A primary function of the HTC is to educate families. Our services include extensive literature, video and audio tapes in the areas of Hemophilia A and B, von Willebrand disease, genetics, home infusion, inhibitors, prophylaxis, hepatitis, HIV, physical therapy, women with bleeding disorders, information for schools, and appropriate sports activities. We have literature designed specifically for children to help them understand their bleeding disorder. Genetic counseling is also available.
Links to Other Community Organizations
There are local, state and national organizations dedicated to supporting people with bleeding disorders. The HTC works closely with and supports these organizations and encourages patients and families to connect with other similarly affected people in the community to share experiences, support, and solutions to common problems.
The UC Davis Hemophilia Treatment Center and the Central California Hemophilia Foundation work cooperatively in many ways, including:
- Providing children with bleeding disorders the opportunity to attend a special summer camp where physicians, nurses and social workers are from local hemophilia treatment centers. This gives the children the opportunity to meet others with bleeding disorders and encourages them to learn self-
infusion, sometimes as young as 7 or 8 years of age.
- Providing specialized outreach programs for women with bleeding disorders, patients in outlying areas, and families with language barriers. The goal is to identify and educate people about their bleeding disorders.
- Identifying individuals who would benefit from the scholarships, tutoring and mentoring programs, and financial client assistance from the Central California Hemophilia Foundation, which serves the same geographic area as the UC Davis HTC.
Once a year, in cooperation with the Hemophilia Council of California, we present the annual Hemophilia Symposium where speakers and panels provide information on the latest medical advances and issues that are currently of concern to the community.
HTC staff is available to provide telephone consulting services to primary care physicians, dentists and other medical and rehabilitative specialists requesting support in the care and medical and rehabilitative treatment for patients with bleeding disorders.
The hemophilia nurse coordinator and team social worker are available to assist patients and families with advice on issues related to their bleeding disorders.
State Financial Assistance Programs
Individuals with hemophilia and von Willebrand disease may qualify for assistance for coordination of care and payment for medical costs from the state of California through California Children Services (CCS), for youth under 21, and the Genetically Handicapped Persons Program (GHPP), for adults or individuals under 21 who are not eligible for CCS due to income restrictions.